The best thing we can say about cycle 4 is that its treatments are done. I’ve said before how grateful we are that Ada can be part of clinical trials for a treatment that looks sure to be the future of chemo and it’s an amazing therapy that uses the body’s own immune system to fight cancer, and that still stands. But because it’s a clinical trial it also means there is a lot of learning, in particular about pain.
The pain team had developed a good protocol for previous trials of this therapy, but with every trial of the immunotherapy the treatment is tweaked, the formulation or dosage changed a little. In Ada’s trial, the changes mean the previous pain protocols were not quite enough, and we’ve had quite a steep learning curve, but as always the pain team are excellent, and we’ve had the opportunity to work with some real masters of the craft.
The doctors and nurse have been exceptional, supporting us, taking our observations into account and in general, it felt like we’ve developed a great partnership.
With extreme lack of sleep and the charged emotions that come with watching your baby in pain, this week has been the hardest physically and mentally so far, but we’ve definitely levelled up in the Jedi parental skills and from what I’ve heard we’ve impressed a few of the medical professionals along the way, just a humble bragging moment we are allowing ourselves😋
For today the plan is to support Ada in her recovery until we get the pain, fever and mucositis in check we will be in the hospital, but we are all breathing a sigh of relief that we’ve made it through🖖🌻🦁