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A Marathon of tests

Hey everybody, Ada is having her MIBG scan right now under general anaesthesia, but I thought we can all enjoy this happy snap of her mimicking birds in the park yesterday. Yesterday was a marathon of tests, but we were able to get home late last night and be sleepless in our own bedsšŸ‘¼ We will do more tests Monday and Tuesday, and then should have all the results on Friday to see whether there has been improvement and plan the next stage of treatment. So far we’ve had a bit of good news, Ada’ echo showed her heart is strong enough to continue treatmentšŸ™Œ And some bad news, Ada has lost some of her hearing due to the previous chemos, which is expected to get slightly worse and then stabilise. She will need a hearing aid in future, but that will be sorted after treatment. For now we’ve decided to start learning Sign as a family, so anyone with any good resources or tips on that please speak upšŸ’œ

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